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Lorenzo's Oil Vindicated
Press Release
Dunn Loring, Va., Sept. 26, 2002-On September 28th, Dr. Hugo Moser
of the Kennedy Krieger Institute in Baltimore, Maryland, will present
the results of a long-term study on the preventive efficacy of Lorenzo's
Oil. This is an international study conducted in collaboration with
12 other laboratories. The presentation will be made within the
framework of the International Symposium on Peroxisomal Disorders
and Regulations of Genes at Ghent University sponsored by the Belgian
Society for Cell and Developmental Biology.
The study involved 104 asymptomatic ALD (adrenoleukodystrophy)
boys under six years of age, 69 in the US, 36 in Europe. While some
boys followed scrupulously the Lorenzo's Oil regime, others did
not. In the first group of boys their level of Very Long Chain Fatty
Acids (the metabolite accumulating in ALD) fell to within 2 standard
deviations from normal. In the second group the VLCFA remained abnormally
high.
A comparison between the 2 groups showed that for the boys who
followed the Lorenzo's Oil regime, the hazard (or risk) of developing
the childhood form of the disease was 23% of that of the noncompliant
boys. This is not to say that the boys who overcame the critical
age of childhood ALD (generally 10 years of age) will not develop
the adult form (AMN), which usually manifests itself toward the
end of the third decade of life.
These results of the study will come as a shock to the medical
community. While admitting that Lorenzo's Oil has the property of
normalizing the level of the VLCFA, most doctors have denied for
many years its therapeutic value.
One of the merits of the study was to demonstrate for the first
time that the VLCFA are indeed involved in the pathogenesis of ALD.
The inventors of Lorenzo's Oil are the late Michaela Odone and
her husband Augusto Odone. Mr. Odone has recently obtained a patent
on Lorenzo's Oil (Patent No. 5,331,009). As the second chapter of
his quest to find a therapy that could restore the myelin sheath
which gets destroyed in ALD, Mr. Odone is currently forging ahead
with The Myelin Project. If this is successful it will help not
only the children of the leukodystrophies, but also the adults who
suffer from Multiple Sclerosis in whom the myelin sheath is similarly
destroyed.
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